Entry tags:
Day post
First time I can share positive news about the new meds. Will keep under cut just in case.
So. After five long years I had found a great doctor who understands how to work and handle CFS. (A rather horrible autuimuunic melody. Took me years to diagnose because there is nil information about it in Israel. So for the last few years I mishandled this horribly and now my condition is...bad.
The doc had me start with LDN. It's supposed to restart certain physical mechanism in my body,mostly regarding Endorphins. Thus they encourage the body to reproduce them it's self.
The result: less fatigue,greater cognitive abilities,increased lucidly.
At the same time I am working hard for the last week about Pacing my self and,by learning mindfulness, learning my own safety limits. .
So,today is the best day I've had for a long time.
Most urgent ongoing challenge: maintenance. If I have much luck I will be good for three or four hours on the computer,and that will require constantly pacing and self awareness. That's my current goal.
Here's to hope
So. After five long years I had found a great doctor who understands how to work and handle CFS. (A rather horrible autuimuunic melody. Took me years to diagnose because there is nil information about it in Israel. So for the last few years I mishandled this horribly and now my condition is...bad.
The doc had me start with LDN. It's supposed to restart certain physical mechanism in my body,mostly regarding Endorphins. Thus they encourage the body to reproduce them it's self.
The result: less fatigue,greater cognitive abilities,increased lucidly.
At the same time I am working hard for the last week about Pacing my self and,by learning mindfulness, learning my own safety limits. .
So,today is the best day I've had for a long time.
Most urgent ongoing challenge: maintenance. If I have much luck I will be good for three or four hours on the computer,and that will require constantly pacing and self awareness. That's my current goal.
Here's to hope
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We don't have CFS, but we are diabetic which leads to fatigue if our blood sugar's too high. So, not the same sort of fatigue, but it's still necessary to pace ourselves.
It must be super hard to have a condition that there's not much info on in your country. We're so glad you found a good doctor. That's very important.
[Tanna
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