sine nomine (![[personal profile]](https://www.dreamwidth.org/img/silk/identity/user.png)
sine_nomine) wrote2025-07-11 08:14 am
sine_nomine) wrote2025-07-11 08:14 am
The earth just keeps spinning
It is too much. Let me sum up:
Fired previous Dr. Hematology. I suggested an iron infusion and his reply was, "Your numbers don't support an iron infusion [I note he didn't order the most critical test that helps determine that], and I will closely monitor your labs." Those would be the labs he didn't feel were necessary on a weekly basis (so nothing to monitor) and that an appointment a week prior to the July date would be fine to rectify everything so the surgery could go as scheduled. Uh no. Not how bodies (and hemoglobin) work!
So got new hematologist who seems way more on top of things AND sees my medical care as a partnership. He ran the test previous Dr. Hematology missed (soluble transferrin, in addition to everything else) and it said iron infusion (because this is clearly iron functionality anemia, not deficiency; it's like my body's response to being roughed up in surgery was to put my iron on lockdown). Bit of an insurance hiccup (why don't we spell that hiccough any longer?) but it's happening today. They actually apparently happen in pairs so next is Wednesday. Should have labs drawn again then, too, and chat about what else we can do.
( Some medical explicitness ahead; you may wish to look away )
Hospitalization caused me to blow past two scheduled surgical dates. Missing the July date is not an option because I have to get home. I can't handle another extension (my original 6 month stay has doubled - with dates planned for July, October, January, and March, and staying for two months after that for more MLD therapy).
Ever onwards.
Fired previous Dr. Hematology. I suggested an iron infusion and his reply was, "Your numbers don't support an iron infusion [I note he didn't order the most critical test that helps determine that], and I will closely monitor your labs." Those would be the labs he didn't feel were necessary on a weekly basis (so nothing to monitor) and that an appointment a week prior to the July date would be fine to rectify everything so the surgery could go as scheduled. Uh no. Not how bodies (and hemoglobin) work!
So got new hematologist who seems way more on top of things AND sees my medical care as a partnership. He ran the test previous Dr. Hematology missed (soluble transferrin, in addition to everything else) and it said iron infusion (because this is clearly iron functionality anemia, not deficiency; it's like my body's response to being roughed up in surgery was to put my iron on lockdown). Bit of an insurance hiccup (why don't we spell that hiccough any longer?) but it's happening today. They actually apparently happen in pairs so next is Wednesday. Should have labs drawn again then, too, and chat about what else we can do.
( Some medical explicitness ahead; you may wish to look away )
Hospitalization caused me to blow past two scheduled surgical dates. Missing the July date is not an option because I have to get home. I can't handle another extension (my original 6 month stay has doubled - with dates planned for July, October, January, and March, and staying for two months after that for more MLD therapy).
Ever onwards.
